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5 - Public (Community) Participation in Policymaking

Published online by Cambridge University Press:  30 November 2025

David L. Weimer
Affiliation:
University of Wisconsin–Madison
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Summary

The OPTN routinely secures public comment on its proposals. The public generally consists of organ transplantation practitioners, individual patients, and organizations representing patients with transplant-relevant diseases. Thus, it might be better labeled “community participation.” Community participation occurs within the organ-specific committees that lead on the development of allocation rules as well as through interaction with committees with crosscutting portfolios, such as those considering patient and minority interests, and regional meetings. Committees issue white papers, progress reports, and proposals for community comment. Particularly with respect to proposals, committees respond to community comments in their submission of final proposals to the Board of Directors. For the CD initiative, the OPTN also sought community input from analytical hierarchy process (AHP) exercises at both the committee and community level. Information from the AHP had some influence in the development of the CD proposal for lungs. More generally, its value was in providing a focus for eliciting more participation and obtaining more focused qualitative comments.

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