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Chapter 2 reconstitutes Cuban and US history with sexuality at the center beginning in 1970s, including the sexual revolution in the US, HIV/AIDS, and the development of progressive sex ed in Cuba. It chronicles the downfall of the Soviet Union and its impact on the Cuban economy, which in turn affected the sexual economy. The meaning of homosexuality evolved in both the US and Cuba, at least in part in relation to geopolitics.
The World Health Organization (WHO) has set global goals to eliminate AIDS and viral hepatitis as public health threats. To better target testing, intelligence on missed opportunities for early diagnosis is needed. We determined hospital and emergency department (ED) attendance before late diagnosis of blood-borne viruses (BBVs) in Scotland 5 years to 2 months prior to diagnosis. Late diagnoses were defined as: CD4 count <350 cells/cmm within 90 days of HIV diagnosis; presentation/death from cirrhosis or hepatocellular carcinoma within 1 year of hepatitis C (HCV)/hepatitis B (HBV) diagnosis. Associations were assessed using logistic regression. Among 543 people diagnosed with HIV 37% were late and 2% of people diagnosed with HCV (4,379) and HBV (1,608) were late. Among late diagnoses: 44.1% of HIV, 60.6% of HCV, and 50% of HBV cases previously attended ED and 27.0% of HIV, 46.5% of HCV, and >30% of HBV cases were previously admitted to hospital. The majority were admitted to hospital or attended ED multiple times. Among people newly diagnosed with HIV, those diagnosed late were more likely to have previously attended ED (aOR: 1.41, CI: 0.99–2.02). Further effort is warranted to address the frequent missed opportunities for earlier BBV diagnosis in secondary care.
This study analyses the relationship between fear of stigma and bypassing primary ART facilities by ART clients in the Upper East Region of Ghana.
Methodology:
Methodology: The study employed an exploratory case study design, involving 52 participants of: ART clients (n = 37), nurses (n = 7), a counsellor (n = 1), cadres (n = 2), pharmacists (n = 2) and data managers (n = 3) through convenient and purposive sampling techniques. Data was collected using semi-structured interview guides and analysed using a thematic framework.
Results:
The study provides ample evidence of the occurrence of stigma-driven bypassing of primary ART facilities by clients. The analysis shows entrenched cultural norms and values and the population’s low awareness of the efficacy of ART fuel the processes of stigma and discrimination towards ART clients.
Strengths and limitations:
We acknowledge the following limitations and strengths: convenient and purposive sampling procedures may not represent the views of all ART clients on bypassing primary facilities. Sensitive nature of HIV and the location of ART centres, coupled with time constraints in probing into all ART bypassing issues. Yet, given the depth of the issues presented and the scope of participants and ART facilities, we believe relevant data was generated to address the research question.
Conclusion:
An integrated approach could be used to address the drivers of stigma and discrimination focusing on awareness creation to undo the entrenched negative cultural beliefs around HIV transmission, and implement anti-HIV stigma legislation to eliminate prejudice towards PLHIV.
This chapter examines the interplay between the HIV/AIDS pandemic and political dynamics, affecting both ruling and opposition parties. The chapter argues that governments can exploit public health crises to their advantage, mainly through their control over healthcare access and the movement of citizens. The HIV pandemic disproportionately impacted urban areas, which are also opposition strongholds. Thus, the majority of those who became ill and or died from the disease were urbanites who would have been opposition voters. The prolonged nature of HIV/AIDS also had a debilitating effect on entire families, where caregivers faced significant exhaustion and burnout, reducing their capacity for political engagement, protests, or voting. The HIV/AIDS pandemic also changed the political and cultural landscape. The death of politicians resulted in multiple elections that favored the ruling party, which had better resources. The loss of cultural leaders, musicians, and others in the arts also diminished the voices of those willing and able to speak up against the regime. The chapter provides a calculation of the exit premium of 4 to 12 percent due to HIV/AIDS-related voter exit.
HIV/AIDS posed a significant health threat in Denmark from the early 1980s until the end of the 1990s, claiming approximately 2,000 lives. Gay men, hemophiliacs, drug users, sex workers and migrants were overwhelmingly among the victims of the disease. They also constituted the groups most associated with it. This led to a raised level of public attention to these groups; a heightened visibility that ambiguously resulted both in improving the life conditions of some while also increasing the stigma of others. This article analyses the roles of different cross-sector actors in shaping the responses to HIV/AIDS in Denmark, with each group influencing and being influenced by the epidemic. Yet despite the clear connection between HIV/AIDS and the minoritized, often marginalized, groups, the article argues that the overarching and dominant response objective during the crisis in Denmark was to prevent a heterosexual epidemic. Throughout the crisis, other responses, aims and objectives concerning the groups most affected by HIV/AIDS could be, and did become, contingent with this dominant objective. The strengths and positions of those subresponses depended on, however, the perceptions of them as logical and tangible means to the primary end of preventing the heterosexual epidemic. Pulling together different and changing responses from different and changing actors serves to crystallize what objectives or logics are the mutual ones, and the significance of this analysis is that what appeared to be a very heterogeneous set of responses to the disease in Denmark, was in fact rooted in the same objective. Notably, the perceived pertinence of preventing the heterosexual epidemic was not rooted in actual rates of infection or spread of the disease.
This paper locates NGOs dealing with HIV/AIDS problems in sub-Saharan Africa into the larger governance context within which they function. This aims at a theoretical shift to assess the aspirational characteristics for the agency of NGOs that are used to legitimate contracting out implementation of internationally designed HIV/AIDS policies to these organizations. The paper interrogates the nature and impact of the governance structure on NGOs and then looks at the implications of this for HIV/AIDS. The questioning is based on a juxtaposition of the perspective of international policy fora in relation to civil society organizations with the way NGO work is perceived by the people at the receiving end of the policies. The paper suggests that as part of the international governance structure, NGOs are limited within the policy frameworks created by this structure. Furthermore, due to their organizational characteristics, NGOs lack capacity to establish sustainable long-term interventions relevant for sociocultural change as perceived by people themselves.
This article reflects on the importance of the relations between state and society in policy-making in the area of public health. Several studies in various sectors such as health, education, and social services have made similar observations on organizational dynamics and the institutionalization of different models of partnerships or contracts, often based on the analytical model of three sectors. Individuals and their networks of relationships, however, remain an almost unexplored dimension in these types of research. Against this backdrop, this study seeks to analyze the movement of HIV/AIDS activists to governmental organizations working in this same field. The analysis raises questions concerning the forms of individual and institutional learning that help to maintain the distinct character of innovation of the Brazilian policy. Professionals who cross the borders hold a different profile once they have accumulated experience working with grassroots and local NGOs, and have also had the chance to be trained and enhance their technical and managerial capacities, since the government has supported NGOs for a long period. When combined, these experiences allow them to maintain relationships with social movements and give them the ability to navigate through the government bureaucracy and handle technical information about fighting AIDS epidemics, making it possible for them to negotiate strategic collaborations reflecting the interests of different groups. Hence, they constantly reflect on the differences between government and social spaces, and keep questioning and modifying their roles in the light of potential and existing complementarities.
In this study, I attempt to integrate the theories of collective action and social movements in an analysis of non-governmental organisations (NGOs) in China. Using panel data of AIDS NGOs from 1994 to 2008, I analyse the factors that influence the rise and development of AIDS NGOs, including changes in political opportunity, funding and organisational ecology. The results show that political opportunity, increased funding and organisational ecology have positive effects on the growth of AIDS NGOs. However, the growth trajectories of grassroots NGOs, government-organised NGOs (GONGOs) and international NGOs are found to be affected by different factors. The implications of the findings are also discussed in relation to the future growth of NGOs in China.
In this paper the notion of an embedded system is developed as an analytic model to examine how state-nonprofit relations develop and become differentiated, using the case of HIV/AIDS nonprofit organizations. Drawing on extensive fieldwork among three prominent HIV/AIDS nonprofit organizations in New York City, this paper shows how the kinds of relationships these nonprofit organizations are likely to form with state agencies are based on their embeddedness in the state-nonprofit system of relations. Three forms of embeddedness are distinguished according to the type and regularity of state-nonprofit contact—direct, outsider, and mediating. Importantly, it is shown how the configuration of relations within which an organization is embedded determines many of the organization’s constraints and opportunities.
The relationship between HIV/AIDS and gay activism has been primarily informed by the American experience and understudied in nondemocratic contexts. Drawing upon qualitative research on China and Singapore, we refine understanding of HIV/AIDS’ influence on the development of gay activism under authoritarian conditions, by examining the processes through which activist organizations interact with laws and regulations, political norms, HIV/AIDS funding, and government responses to both HIV/AIDS and collective organizing. We show how HIV/AIDS’ influence plays out in multiple patterns, depending on the strategic responses that gay activists select from a constrained range of options to shape their organizations’ destinies. Therefore, we provide insights for development agencies and international donors into whether and how international assistance intended to encourage activism and wider social change are mediated by political and legal controls on local activism.
International donors frequently seek to transition local NGOs to national government funding during aid reduction. The outcomes of this transition vary widely between contexts. Scholarship on aid reduction has yet to explain this variation, and some donor policies for facilitating transition lack a firm basis in research. In this article, we use NGO–government relations theory to analyze case study data from the HIV/AIDS sector in Thailand. We find that NGO–government relations theory provides a convincing explanation for the outcomes of the sector’s transition. The theory indicates that for transition to be successful, the NGO–government relationship must shift from a supplementary one, marked by outside funding for NGOs, guarded attitudes, and more restrictive government oversight, to a complementary relationship marked by government funding, collaborative attitudes, and regulations that facilitate NGO activities. This shift in Thailand has been largely successful but is incomplete. The findings suggest that donors should pay attention to the underlying attitudes of NGOs and government, in addition to laws and bureaucratic procedures. The research identifies several current donor programs with the potential to facilitate attitude change and one that may be counterproductive.
There are many explanations for the survival of long-serving political parties, from access to state wealth to the use of excessive violence. A yet unexplored reason, particularly for parties that have survived under extreme conditions, is voter exit. In Death, Diversion, and Departure, Chipo Dendere shows that voter exit creates new opportunities for authoritarian regime survival. With an empirical focus on Zimbabwe, Dendere centers two types of voter exit: death and migration. She shows how the exit of young, urban, and working professional voters because of mass death due to the AIDS pandemic and mass migration in the wake of economic decline has increased the resilience of a regime that may have otherwise lost power. With authoritarianism on the rise globally and many citizens considering leaving home, Death, Diversion, and Departure provides timely insights into the impact of voter exit.
Arts-mediated HIV/AIDS education received significant funding from Ghana’s donor partners and global health institutions during the first two decades of the pandemic. Yet these interventions had a mixed impact. On the one hand, there was – and continues to be – near universal awareness of HIV/AIDS, including risk factors and health outcomes. On the other hand, low condom use and persistent stigma suggest that knowledge has not translated into sexual health protective behaviours and psychosocial support. In Chapter 4, I examine how the arts were incorporated into HIV/AIDS interventions, focusing on the use of mass media campaigns to raise awareness and educate, and on ‘folk media’ to educate and empower communities. I discuss a study that applied a narrative approach to examine local knowledge and lived experience, the findings of which illustrate important contrasts between community and indigenous healing system responses to HIV/AIDS and official health service responses. I will conclude with reflections on what these insights yield for developing more robust arts-based HIV interventions in the future.
This chapter provides a case study of how the rule of law was temporarily strengthened in one subbranch of health and medical law. The authors are doctors who ensured wider access to HIV/AIDS services to three key populations by setting up primary healthcare clinics for drug users, men who have sex with men, and sex workers. Providing services is challenging as the latter two groups are engaged in behavior considered criminal, and their very existence is officially denied. Sex between men and adultery can be punishable by death. The doctors’ harm-reduction approach was gradually expanded province- and nation-wide during Khatami’s presidency (1997-2005), allowing even for methadone treatment and needle exchanges. Under President Ahmadinejad, the government returned to the revolutionary “war on drugs” and policing approach, closing the triangular clinics and forcing the authors into exile. The chapter illustrates how legal challenges intertwine with cultural, religious, and political responses to Iran’s HIV/AIDS pandemic.
Children, adolescents, and young people living with HIV (CALWHIV), including those in resource-limited settings, may be at increased risk of severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) infection, poorer coronavirus disease 2019 (COVID-19) outcomes, and multisystem inflammatory syndrome (MIS). We conducted a repeat SARS-CoV-2 seroprevalence survey among CALWHIV in Europe (n = 493) and South Africa (SA, n = 307), and HIV-negative adolescents in SA (n = 100), in 2020–2022. Blood samples were tested for SARS-CoV-2 antibody, questionnaires collected data on SARS-CoV-2 risk factors and vaccination status, and clinical data were extracted from health records. SARS-CoV-2 seroprevalence (95% CI) was 55% (50%–59%) in CALWHIV in Europe, 67% (61%–72%) in CALWHIV in SA, and 85% (77%–92%) among HIV-negative participants in SA. Among those unvaccinated at time of sampling (n = 769, 85%), seroprevalence was 40% (35%–45%), 64% (58%–70%), and 81% (71%–89%), respectively. Few participants (11% overall) had a known history of SARS-CoV-2-positive PCR or self-reported COVID-19. Three CALWHIV were hospitalized, two with COVID-19 (nonsevere disease) and one young adult with MIS. Although SARS-CoV-2 seroprevalence was high across all settings, even in unvaccinated participants, it was broadly comparable to general population estimates, and most infections were mild/asymptomatic. Results support policy decisions excluding CALWHIV without severe immunosuppression from high-risk groups for COVID-19.
Understanding the link between HIV/AIDS knowledge and child marriage is important for designing and planning effective intervention programmes. Despite significant advances in HIV/AIDS prevention and treatment, it remains important to study the impact of child marriage on HIV/AIDS knowledge because HIV/AIDS continues to affect millions globally. This study investigated the association of child marriage with scores on an index measuring comprehensive knowledge about HIV/AIDS transmission and prevention. Analysis was conducted on a sample of women aged 18–24 years, using nationally representative DHS household surveys from 18 countries. Findings indicate that there is no direct statistically significant effect of child marriage on women’s comprehensive knowledge about HIV/AIDS once controls for other factors affecting knowledge are included in the regression. However, the coefficients for educational attainment are statistically significant in most countries, at least when secondary or higher education is considered. This suggests that child marriage may affect knowledge about HIV/AIDS indirectly through its impact on educational attainment for girls who marry early.
This chapter is about the influence of transnational actors on China’s sex worker health policies. While the policing of prostitution in China is a story of domestic law and politics, the public health approach to regulating sex work in China starts in the international global health community. It then makes its way into central government health institutions in Beijing, and trickles down into the lives of local state health workers and the sex workers in their community. These transnational roots matter: they have shaped both the content of sex work health policies and the public health officials who manage their administration. Indeed, the approach that China’s health policies and officials endorse for gauging the prevalence of HIV/AIDS and reducing its occurrence among sex workers, and the language these authorities use, reflect best practices in the global public health community. Yet the obstacles that Chinese health agents encounter result in practices that fall short of these ideals and harm sex workers. That often grim reality is the subject of the next chapter. What I highlight in this chapter is how the global public health community working in China to support the creation of HIV/AIDS policies seems disengaged from what actually happens on the ground.
This chapter is about the local health officials who implement China’s surveillance and behavioral outreach health policies for estimating the prevalence of HIV/AIDS and reducing its occurrence among sex workers. These policies set out clear guidelines for targeting certain types and numbers of sex workers for HIV/AIDS testing and outreach, with the goal of obtaining accurate knowledge of the overall sex worker population and reaching out to the individuals who present the greatest concerns to public health. These policies are also designed to protect the individual rights of sex workers, a prerequisite for obtaining higher quality data and increasing the likelihood that public health interventions will yield safer sexual behaviors. Yet frontline health workers often deviate from these rules, as obstacles within China’s health bureaucracy complicate proper policy implementation. Local health officials must also contend with two powerful entities that are predisposed to oppose their work: the sex industry and the police. Taken together, these challenges lead health agents to focus their testing and outreach efforts on hostesses instead of low-tier sex workers – even though women in the low tier are most in need of health interventions – and result in other irregularities in policy implementation with grave public health consequences.
Exponential growth can be a head-scratcher. Accounts and taxonomies that seem inviting near the start of a growth curve can seem like fool’s errands afterwards. And the story of queer—or gay and lesbian, or queer and trans, or LGBTQ+, or LGBTQIA+– poetics since the late 1960s is a story of exponents, of proliferation from stigmatized rarity to celebrated (but still endangered) ubiquity. Does Randall Mann share linguistic goals with Pat Parker? Chen Chen with Samuel Ace? Reginald Shepherd with Carmen Giménez Smith? A sampling offered by me (a white, prosperous, midcareer, polyamorous, Northeastern trans woman with kids) may be more likely to include poets who share my identities, as well as my tastes, and to overlook those who do not. But there is—at least in the arts—no view from nowhere: one informed view is better than none.
Sexuality is one of the few curricular areas so constrained by policy that it often fails to resemble the topic students are interested in learning about or address the pressing concerns to which it was supposedly oriented. Focused on prevention of various sorts – and this often means prevention of all sexual activity, especially for youth – the more positive lessons about what sexuality can be for self-identity, relationality, community-building, and political life remain unaddressed. Though sexuality education has attempted to address the public goods of population health and individual development, too often it has done so without making clear concepts of gender, sex, ethical relationships, pleasure, and community. This chapter traces tensions in sexuality education from the start of its status as part of the official public school curriculum in the late nineteenth century to current debates that continue to shape how sexuality is defined and taught. We highlight continuities and ruptures that have characterized the global spread of sex education, showing how much of what happens in the Global South is shaped by legacies of colonialism and American political priorities. The chapter concludes by considering emerging challenges and opportunities for progress in sex education.