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This study examined how subjective disaster recovery and cancer-care satisfaction jointly shape family well-being in Japan, and when better cancer care accompanies higher well-being.
Methods
A quota-stratified web survey of 2,179 adults aged 20-69 was conducted across Japan (September 2019), with quotas by Fukushima residency and family cancer experience. Subjective recovery from any major disaster within 10 years (unexposed; recovered or in prospect; no prospect), household cancer experience, and Short FAMCARE satisfaction were modeled against latent well-being by structural equation modeling.
Results
Among non-cancer households (n = 1,324), unrecovered damage was associated with lower well-being (β = −0.08, 95% CI −0.13 to −0.03, P = 0.001), with no association in cancer-affected households (β = 0.00, P = 0.98). Among cancer-affected families (n = 855), high satisfaction was associated with higher well-being (β = 0.17, P < 0.001), more so in recovered than unrecovered households (contrast 0.149, 95% CI 0.031 to 0.268, P = 0.014). Resting on small subgroups, this interaction is exploratory.
Conclusions
Better cancer care did not offset incomplete disaster recovery; its association with higher well-being was confined to households with recovery achieved or in prospect. These cross-sectional findings are consistent with delivering reconstruction and cancer care together.
Cancer is an enormous public health burden among Black and Latinx cancer survivors, and they are at risk of facing barriers to accessing cancer treatment and support in the United States. This study explored the unique challenges and experiences faced by Black and Latinx cancer survivors through the lens of their caregivers, including the specific cultural, social, and systemic factors that influence cancer survivorship experience and quality of life within these communities in the United States.
Methods
We used a qualitative descriptive design for the study, and conducted 6 focus group discussions (3 Latinx and 3 Black groups) with a total of 33 caregivers of cancer survivors, (Mean age = 63 years). Data were analyzed using inductive content analysis.
Results
We identified 3 main themes: (1) families as (un)stressors in survivorship such as the vitality of social connections and families as unintended burden; (2) responses after diagnosis specifically whether to conceal or accept a diagnosis, and (3) experiencing health care barriers including communication gaps, biased prioritizing of care, and issues of power, trust, and need for stewardship.
Significance of results
The findings align with previous research, highlighting the complex interplay between cultural, familial, and healthcare factors in cancer survivorship experiences within underserved communities. The study reiterates the need for culturally tailored emotional, physical, financial, and informational support for survivors and their caregivers. Also, to improve quality of life, the study highlights a need to strengthen mental health and coping strategies, to help address psychological distress and improve resilience among survivors and their caregivers.
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