Understanding End-of-Life Care as a Cultural Practice through Policy
from Part I - Everyday Dying and Deathwork
Published online by Cambridge University Press: 09 July 2026
This chapter examines how death and dying are perceived to be knowable and manageable through end-of-life care. Leveraging extensive ethnographic research about English palliative and end-of-life care since 2010, the author scrutinizes how policies shape perceptions and practices surrounding the care of the dying. This includes discussions on how the end of life is understood within policy, influenced by palliative care philosophy and practice, and how this influences experiences and expectations of death and dying. Through detailed descriptions, the chapter highlights the impact this has on perceptions about when dying is recognized, the centering of needs-based approaches to care, and the cultural values evident in how “good” dying and death are discussed and idealized. Contrasting policy assumptions with lived experiences, the author invites an analysis of the limits of palliative and end-of-life care as frameworks for understanding dying and death. Ultimately, the chapter emphasizes the necessity for nuanced approaches to end-of-life care, portraying dying and death as not only inescapable facets of life but also deeply entrenched in social and cultural contexts that warrant consideration.
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