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Denial in patients with advanced cancer is a common yet poorly understood phenomenon. This case report aims to illustrate the complexity of apparent denial in a psycho-oncology setting and to use it as a clinical anchor to review the concept of denial through multiple theoretical and practical lenses, highlighting key considerations for clinicians.
Methods
We present the case of a woman in her forties, originally from Africa, diagnosed with advanced metastatic gastric cancer. The case is examined through a narrative review of the existing literature on denial, encompassing psychological, psychiatric, neurocognitive, cultural, and systemic perspectives.
Results
The patient demonstrated behaviors initially interpreted as denial by the treating service, including behaviors such as declining prognostic discussions, refusing to inform her family, and avoiding opioid analgesia, yet she explicitly acknowledged her diagnosis and its severity. Psycho-oncology consultation helped reframe her responses as coherent, value-driven choices rooted in her role as a mother and her cultural background, rather than as impaired insight or maladaptive coping. On the final day of her life, she accepted palliative care and consented to family notification, illustrating the fluid and evolving nature of apparent denial.
Significance of results
This case underscores the importance of individualized assessment and offering care before pathologizing patient disengagement. We discuss how palliative or psycho-oncology practitioners could distinguish adaptive coping from maladaptive denial, identify underlying psychiatric conditions, and screen for neurocognitive impairment if relevant. A multidisciplinary, empathic approach that respects patient autonomy is essential in navigating such complex encounters.
This study aimed to examine religious and post-Christian spiritual orientations, types of spiritual and ritual activities, coping strategies of patients with advanced illness and explore associations between spiritual needs, practices, well-being, quality of life, and coping styles.
Methods
One hundred and two patients completed validated instruments: Post-Christian Spirituality Scale, Spiritual Needs Questionnaire, Spiritual Practices Questionnaire, Functional Assessment of Chronic Illness Therapy–Spiritual Well-Being Scale, Global Quality of Life Scale, and Brief-COPE Questionnaire. Descriptive statistics summarized participant characteristics and scale distributions. Spearman correlations (Bonferroni-adjusted) examined associations between spiritual needs, practices, and coping modes. Multivariate regression analyses assessed whether ritual practices predicted spiritual needs.
Results
Inner peace (median, 1.4; IQR, 1, 2) and humanistic/prosocial practices (median, 66.6; IQR, 44.4, 83.2) were prominent spiritual needs and frequently used rituals, respectively. Strong correlations were observed between religious needs and religious rituals (rho = 0.87). Existential, inner peace, and giving/generativity needs correlated moderately with existentialistic practices (rho = 0.56–0.69). Humanistic/prosocial spiritual practices were moderately associated with giving/generativity (rho = 0.52) and inner peace needs (rho = 0.42). Emotion-focused coping, particularly acceptance and emotional support, was most consistently associated with spiritual needs and practices, reinforcing the centrality of relational and embodied forms of spirituality at the end of life. Regression analyses confirmed existentialistic practices predicted existential and inner peace needs, while humanistic practices predicted generativity needs.
Significance of results
Findings demonstrate strong alignment between spiritual needs and ritual activity, supporting development of personalized, ritual-based spiritual care frameworks. Determining individual orientations toward embodied, relational, and humanistic practices may offer an adaptable means of addressing spiritual suffering.
Contemporary animal welfare science emphasises the roles of challenge, skill development and skill expression in positive animal welfare, and takes a dynamic, temporal view of affect. However, cognitive enrichment as a welfare intervention (CE originally defined by Clark 2011 and later termed CEwelfare by Clark 2022) has largely focused on how challenge impacts welfare at a general activity budget level, rather than evidence of skill development and coping during challenge. This paper aims to realign CE with the current views of challenge and animal welfare, by proposing an updated CE definition and a new methodological approach. CE arises when an animal is challenged to develop and express its evolved cognitive skills, and the process or outcome of coping with challenge is associated with a net positive affective state. We argue that rule-scaffolded play (gameplay) could be a powerful subtype of CE, because games offer skill development opportunities similar to the Zone of Proximal Development in humans. Gameplay unfolds as a sequence of events, allowing us to explore how cognitive performance is temporally linked to emotional expression. We describe two broad types of CE game – Innovation and Flow – that feature relatively lower and higher rule scaffolding, respectively. We also discuss the role of frustration in CE; initial frustration is normal when animals encounter a challenge, but a Flow game aims to avoid ongoing boredom and frustration by maintaining a skill-challenge balance. We end by presenting a case study of a Flow game for marine mammals in a zoological setting.
Walkouts appear to run against multilateral diplomacy’s core commitment to sustained engagement. Drawing on ethnographic research at the Organization for Security and Co-operation in Europe (OSCE) after Russia’s 2022 full-scale war against Ukraine, this article analyses walkouts as a way of going on when the anchoring practices of diplomatic order become untenable. The invasion unsettled the conditions under which sitting together with Russian diplomats could be reproduced as meaningful dialogue, generating emotional, normative, and practical frictions in everyday interaction. The article introduces coping as a liminal process through which diplomats provisionally sustain institutional interaction when the reconstruction of anchoring practices is politically or practically unavailable. At the OSCE, walkouts acted as one such coping strategy. They allowed diplomats to remain in the organisation while temporarily displacing ordinary dialogue with Russia. The case of walkouts highlights how coping supports the sustainment of order without stabilising it, while reshaping the boundaries through which diplomacy is recognised and practised. By tracing the emergence, performance, and waning of walkouts, the article provides an ethnographic account of an underexplored diplomatic gesture and theorises how Russia’s invasion of Ukraine has transformed diplomacy and multilateralism, while opening a way to study unstable orders in transition.
This qualitative study explores how women survivors of intimate partner violence (IPV) cope with abuse and reconstruct well-being and meaning in their lives. The study was conducted with 16 women aged between 27 and 51 living in three cities in the southeastern region of Türkiye. Participants were recruited through women’s shelters and non-governmental organizations (NGOs) using purposive and snowball sampling. Data were collected through semi-structured interviews and analyzed using thematic analysis. The findings indicate that women’s experiences of violence were shaped by sociocultural gender norms and included physical, psychological, sexual, and economic abuse. Participants described multiple coping strategies, including seeking social support, emotional expression, religious coping, and resisting stigmatization. Women’s pathways toward well-being involved gaining economic independence, developing healthier communication patterns, and investing in personal development. Meaning-making processes included redefining self-identity, motherhood, reconnecting with positive experiences, and interpreting survival as a source of strength. The findings highlight survivors’ agency and resilience and underline the importance of social, psychological, and economic support mechanisms in facilitating recovery following IPV.
The Family Adaptation study, ancillary to the Single Ventricle Reconstruction Trial, examined the prevalence of anxiety and its associations with stress, psychosocial factors, and quality of life measures in parents of infants who underwent the Norwood procedure.
Materials and methods:
Two hundred and fifteen parents (143 mothers and 72 fathers) of 146 infants completed state anxiety (State Anxiety Inventory), stress, psychosocial, and quality of life measures post-Norwood, post-Stage II, and at a final visit (median child age: 14 months).
Results:
A substantial proportion of parents reported severe anxiety symptoms following the Norwood surgery, with 61% of mothers and 43% of fathers affected, decreasing over time to 46% and 33% by the final visit, respectively. Mothers’ average STAI-S scores were significantly higher than fathers’ post-Norwood (47.7 ± 13.2 versus 43.5 ± 11.8, p = 0.03), declining to 42.1 ± 13.0 versus 39.0 ± 9.6 (p = 0.14) at the final visit. Stress related to parenting a child with a serious illness was a stronger and more consistent predictor of mothers’ anxiety over time (highest R2 = 0.49 for emotional distress), whereas insufficient coping and fewer protective factors were greater and more consistent predictors for fathers (highest R2 = 0.40 for mastery and health). Quality of life was a consistent predictor of state anxiety for both mothers and fathers.
Conclusion:
Anxiety is elevated in parents of infants who underwent the Norwood procedure and is influenced by a complex interplay of stress, psychosocial factors, and quality of life. Addressing these factors is crucial for improving parents’ mental health, which in turn promotes the well-being of the entire family.
The need for critical care is often a particularly stressful and traumatic event for patients and their loved ones, and many patients, particularly those who require sedation and mechanical ventilation have impaired or inaccurate memories of their experience. ICU diaries are diaries written for and to patients by families and staff in plain language. In daily entries, the reasons for admission, events, developments, milestones, or decisions are recorded, sometimes accompanied by photos of the patients. Patients can read the diary afterwards to better understand the events of their hospitalization. Families often experience stress relief by writing about their emotions and feelings in the diary. Recent evidence shows that ICU diaries are beneficial in: reducing psychological symptoms in patients, supporting the development of coping skills and resilience in family members, helping staff reflect on their professional care, enhancing communication among families and staff, and humanizing critical care. Implementing diaries into practice can be challenging, and identifying barriers and specific solutions is essential for success.
Voluntary work in Charities is a constantly growing reality: in particular, in the last few years, voluntary work in hospitals has become of great importance, marking a substantial increase of commitment in social issues. However, at the same time, volunteering Charities have been plagued by the increase of the phenomenon of dropout, that is, volunteers abandoning the Charitable Association they’re working in, often after a relatively short period of activity. In this study, we attempted to verify if and how active and dropped out volunteers perceive their own activity as a source of anxiety and stress. Our data show that both active and dropped out volunteers show high levels of burnout; in fact, dropped out volunteers show higher levels of burnout, especially of emotional exhaustion, in comparison with active volunteers. Subsequently, we identified the factors potentially assuming the role of mediators or moderators in the direct relation involving the status of voluntary work activity and the levels of anxiety and burnout. Our study demonstrates that coping strategies and the relationship established with hospital workers can be considered good moderators.
Non-suicidal self-injury (NSSI) displays an alarmingly high prevalence rate among university students, placing them at high risk for adverse long-term outcomes, including suicide.
Aims
This study aimed to achieve a better understanding of factors contributing to NSSI in university student populations by examining reasons for NSSI and histories of stressful events and coping strategies.
Method
A total of 185 university students with a lifetime history of NSSI were assessed for depressive symptoms and NSSI characteristics. They completed three questionnaires on NSSI reasons, stressful events and coping strategies during childhood and adolescence. Each questionnaire included an ‘others’ option combined with an open-ended response box. After descriptive analysis of the closed questions, these open-ended responses were qualitatively categorised and analysed as predictors of depression severity and NSSI continuation from adolescence into adulthood.
Results
Qualitative analysis identified eight, five and ten categories from the open-ended responses for NSSI reasons, stressful events and coping strategies, respectively, with substantial to almost perfect interrater reliability. Two qualitative reason categories, one stressful event category and two coping strategy categories significantly predicted depression severity (β = 0.21–0.23). Participants reporting events in the stressful events category ‘Traumatisation and experiences of violence’ were three times more likely to continue NSSI into adulthood (f2 = 0.07).
Conclusions
This study demonstrates the value of mixed-methods approaches. Stable qualitative categories highlight the need to capture individual variations in NSSI-related factors. It emphasises trauma-related stressors due to their influence on depression severity and persistence of NSSI into adulthood.
Living in a city for older adults inevitably involves facing and coping with the frequent deaths of neighbors, friends, and acquaintances, serving as a constant reminder of one’s mortality. Through the stories of three individuals, this chapter offers a glimpse into the experiences of dying, caregiving for the dying, and grieving in The Villages. It also contrasts the pervasive presence of death with the relative invisibility of the "fourth age."
Cognitive and behavioral factors contribute to the mitigation of stress-related health outcomes in later life. Given that stress management interventions for older adults are an important target for healthcare, there is a need for a relatively short and standardized assessment tool to comprehensively measure stress and coping in later adulthood while minimizing the burden on participants. The Stress Assessment Inventory (SAI), a 123-item measure designed to assess stress and coping resources in younger adults.
Objective
The objective of this study was to examine the psychometric properties of the SAI in 294 older adults.
Methods
The SAI was evaluated on its dimensionality, reliability, and validity.
Findings
A shortened SAI is proposed for older adults, with good internal consistency and criterion validity. The Revised SAI was found to have a three-factor model that captures Adaptive Cognitive Resources, Maladaptive Behavioral and Cognitive Habits, and Adaptive Health Habits.
Discussion
The current study supports the use of the Revised SAI in community-dwelling older adult populations as a comprehensive tool to assess stress and coping for use by researchers and healthcare professionals.
Will voters punish incumbents for psychological distress associated with public policy during external shocks? This study examines this question in the empirical context of the first wave of the COVID-19 pandemic in India, utilizing three novel cross-sectional surveys conducted in the first three weeks of June 2020, immediately after the national lockdown policy was officially revoked. We find that propensity to vote for the nationally incumbent Bharatiya Janata Party (if hypothetical elections were held on the day of the survey) was negatively correlated with mental stress from routine disruptions in mobility (Week 1); worsening mental health (Week 2); and emotion-focused coping (Week 3). We show that these effects are strongest in BJP-ruled states. We argue that psychological distress shaped political attitudes in the midst of the pandemic and this effect was conditional on the source of distress and moderated by governmental clarity of responsibility.
Childhood bereavement is a public health issue with significant mental health implications, including depression, intrusive grief, and suicidality. Theories suggest that children’s malleable processes, like coping and subjective views of themselves and their environment, influence adaptation to bereavement. Protective processes may mitigate mental health risks, while risk processes may exacerbate them. Using a sample of support-seeking, parentally-bereaved children (8–16 years; M = 11.39, SD = 2.43; 53% male; 67% White), this study employs latent profile analysis to identify baseline patterns of coping and subjective views; and examines how profile membership predicts depression symptoms, intrusive grief, and suicidality at 14-month and six-year assessments. Three profiles were identified: Low Protective-High Risk (34%), High Protective-Low Risk (23%), and High Protective-High Risk (43%). Profile membership predicted depression symptoms. Children in the Low Protective-High Risk profile showed higher depression symptoms than those in the other profiles 14-months later, while children in the High Protective-Low Risk profile unexpectedly showed higher depression symptoms six-years later compared to those in the Low Protective-High Risk profile. Profile membership did not predict intrusive grief or suicidality. Findings underscore the importance of person-centered approaches in understanding adaptation following parental death and raise questions about the association between baseline childhood protective processes and long-term depression symptoms.
Traumatic experiences can trigger post-traumatic stress disorder (PTSD) and influence one’s future perspective, which can change over time with the sense of control.
Aims
We measured changes in predictions about the future among individuals who experienced a traumatic event, with or without PTSD, according to their sense of control, and its relationship with post-traumatic change (post-traumatic stress symptom severity, well-being and coping strategies).
Method
Eighty-one exposed individuals (who experienced the 2015 Paris terrorist attacks), some with PTSD, and 71 non-exposed controls (who had not experienced the attacks) were asked to estimate the probable future occurrence of 20 controllable and 20 uncontrollable events, 7–18 and 31–43 months after the attacks. Repeated-measures analysis of variance and correlations were performed to measure inter-group differences in outcomes and relationships with post-traumatic change.
Results
Exposed participants with PTSD and without PTSD estimated uncontrollable future events to be more likely over time. Uncontrollable predictions were related to increases in post-traumatic stress symptom severity for individuals without PTSD. Uncontrollable predictions were not correlated with well-being or coping in exposed individuals.
Conclusions
Over time, exposed individuals provide increasingly high probability ratings for the future occurrence of uncontrollable events, a tendency associated with an increase in post-traumatic stress symptom severity in exposed individuals without PTSD. This may reflect potential delayed PTSD symptoms over time in individuals who did not initially develop PTSD following the attacks. The range of the measurements and the use of a self-constructed questionnaire limit the internal validity of the results.
Research on grief among family caregivers of individuals with dementia has seen a notable increase. Our objective was to synthesize the relationship between coping factors and pre-death grief (PDG).
Design
(Prospero protocol: CRD42024560208) We conducted a systematic review of literature from PubMed, Web of Science, Scopus, PsycInfo, and Medline up to July 2024. Included studies encompassed quantitative, qualitative, and mixed methods approaches. During the study selection process, we excluded data on intervention effectiveness and studies not published in English. The quality of the studies was evaluated using the Mixed Methods Appraisal Tool. Evidence was summarized narratively.
Participants
Participants in this study are family caregivers who take care of dementia patients.
Methods
We included data from 12 studies in our analysis. The majority of these investigations were carried out in Western countries. The research primarily involved spousal or adult child caregivers and centered on PDG. We included validated measures of PDG in each study.
Significance of results
Among the reviewed studies, five reported on coping strategies, while seven addressed coping resources. Overall, the findings indicated that the application of coping strategies, specifically positive coping strategies, is effective in alleviating PDG and mitigating the effects of caregiving burden on PDG. Coping resources – including self-efficacy, sense of coherence, and support from friends and family – appear to have a beneficial impact in reducing PDG. Additionally, the quality of relationships with friends and family members was found to be a significant factor. Moreover, spiritual and religious beliefs, along with community faith, have been identified as crucial elements in alleviating grief experienced by caregivers.
Conclusion
Knowing what coping strategies and resources are beneficial to decrease PDG experiences among dementia caregivers.
Exposure to COVID-19 messaging that conflates older age with risk/infirmity has been suggested to have negative effects on older people’s sense of personal agency (i.e., sense of capacity to exercise control over one’s life).
Objectives
This qualitative study sought to determine how older adults perceived this vulnerability narrative within early COVID-19 public messaging and how this may have influenced their personal agency.
Methods
Semi-structured interviews with 15 community-dwelling older adults in Manitoba were completed and analysed using inductive thematic analysis.
Findings
Study findings suggest that early COVID-19 public health messaging created associations between vulnerability and older age that increased the participants’ sense of age-related risk. As a response, many participants described engaging in certain actions (e.g., lifestyle behaviours, following public health protocols, coping mechanisms) to potentially increase their feelings of personal agency.
Discussion
This study suggests that creators of public messaging pertaining to older age must be mindful of the ways that it may fuel a vulnerability narrative.
Personal narratives of genocide and intractable war can provide valuable insights around notions of collective identity, perceptions of the 'enemy,' intergenerational coping with massive social trauma, and sustainable peace and reconciliation. Written in an accessible and narrative style, this book demonstrates how the sharing of and listening to personal experiences deepens understandings of the long-term psychosocial impacts of genocide and war on direct victims and their descendants in general, and of the Holocaust and the Jewish–Arab/Palestinian–Israeli context, in particular. It provides a new theoretical model concerning the relationship between different kinds of personal narratives of genocide and war and peacebuilding or peace obstruction. Through its presentation and analysis of personal narratives connected to the Holocaust and the Palestinian–Israeli conflict, it provides a deep exploration into how such narratives have the potential to promote peace and offers concrete ideas for further research of the topic and for peacebuilding on the ground.
Chapter 9 proposes topics and issues that connect to further research of personal narratives of genocide and war, and their connections to sustainable peace and reconciliation. This chapter proposes four different areas that have relevance for further exploration of this topic that can be explored qualitatively, quantitatively, or via mixed methods. The four research arenas are: (1) exploration of the categories of personal narratives of genocide and war; (2) personal narratives of genocide and war and their ties to societal transformation; (3) personal narratives and coping with the effects of genocide and war; and (4) further exploration of our conceptual model concerning kinds of personal narratives and the conditions that can either encourage peacebuilding processes or peace obstruction.
Haridimos Tsoukas develops the argument of Chia and Rasche further. In line with earlier works by Chia (Chia and Holt 2006; Chia and MacKay 2007; MacKay, Chia and Nair 2021), he argues that strategy as practice researchers need to adopt a real practice ontology if they wanted to go beyond the process approach in strategy. He supports the call for a clear break with methodological individualism in favour of a view that gives primacy to practice. Yet he warns about pushing research too much in the opposite direction, where strategy is treated as emergent by definition. Instead, we need to reconcile – from a practice-based approach – the possibility of both non-deliberate and deliberate types of action in strategy. Drawing on Heidegger’s philosophy, he develops a framework that distinguishes between four different types of actions according to the involved form and degree of intentionality: (1) ‘practical coping’ (based on tacit understandings); (2) ‘deliberate coping’ (based on explicit awareness); (3) ‘detached coping’ (based on thematic awareness); and (4) ‘theoretical coping’ (based on theoretical understanding). These four forms of action are then linked to four forms of strategy making.