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The prologue frames the Iliad and the Odyssey as poems that speak to the aftermath of violence. Rather than treating war as an episode that ends when fighting stops, it introduces the book’s central claim: Homeric epic preserves the textures of lived experience, including silence, grief, and the long work of rebuilding. It also explains the book’s approach, combining archaeology and close reading for general readers and students.
Operational-level grievance mechanisms are often viewed as a means to empower rightsholders to access remedy for human rights abuses. This article presents qualitative research findings on Kakuzi’s ‘Independent Human Rights Mechanism’, a mechanism specifically designed to provide remedy for human rights abuses. Kakuzi’s grievance mechanism takes place in the context of historical land injustices, whereby thousands of squatters are subject to practices of enclosure—territorial, legal and epistemic—that legitimate Kakuzi’s authority over the land.
The article takes an actor-oriented approach, following grievances across their full trajectory—from community members’ injurious experience, to those grievances heard by the mechanism, to representation of community grievances in corporate disclosure—while foregrounding the agency communities exercise in relation to the mechanism. The mechanism delimits which grievances are admissible and remediable. Communities dissent from this delimitation through various strategies. Corporate disclosure of grievances then distorts local realities.
In the face of ongoing welfare challenges, a wave of academic and policy thinking has advocated for recentring public policy around the principles and practices of relational welfare. The present paper argues that the potential of relational welfare can be further supported by sharper analytical understanding of its diverse potential forms and their varying key relational characteristics. To explore these priorities, the paper draws on sixty-one semi-structured interviews with thirty-six staff and twenty-five participants from sixteen UK Supported Employment services cast in a relational welfare mould. These grounded lived experiences highlight individuals’ universally positive experiences of these relational interventions, in contrast to past typical activation experiences, and the importance of a subset of Cottam’s relational welfare identifiers to those experiences. Rather than being homogeneous in their qualitative characteristics and requirements, the findings suggest legitimate variation in – and a hierarchical nesting of – relational welfare characteristics across more and less formalised relational interventions. Findings help to further critical understanding of relational welfare interventions and to support scholars and policy makers alike to maximise the reach, purity and potential of relational welfare approaches across diverse policy domains and approaches.
In this chapter the author presents a series of impressionistic patient narratives that explore the import of the physician–patient relationship in psychiatric prescribing.
The perspective that a patient has about treatment, especially when it comes to medication, is often very different from that of the psychiatric provider. Providers and patients alike may find it difficult to acknowledge and reconcile these divergences in their perspectives, leading to stuck points and potentially unhelpful or contentious dynamics in treatment. In this chapter, we explore some common types and sources of divergence, as well as some practical steps both providers and patients can take to understand and perhaps remedy them.
What would it take to build a belonging-oriented criminal justice system? In this chapter, I explore this question with five system-impacted scholars with living or lived experience at a New York State facility. Together, we map pathways for the changes needed to create a penal system capable of reconciling the demands of individual justice and public safety with a more humane and dignified approach to those in conflict with the law. The chapter centers on three interrelated themes. Humanization calls for understanding human behavior, including criminal conduct, across a person’s lifespan, taking into account individual, social, and structural factors that shape developmental trajectories and support the capacity for change. Proximity entails dismantling structural, moral, and epistemic barriers to collaborative dialogue on justice matters. It seeks to create spaces where diverse voices converge to advance solutions to social harms that foster accountability, prevention, and reparation, while challenging prejudice and distrust. Epistemic empowerment involves incorporating the perspectives of (formerly) incarcerated individuals into theoretical and practical inquiries regarding offending, imprisonment, and legal system reform, recognizing the significance of their contributions to civic, legal, and political conversations about justice and change. The chapter operationalizes the epistemic recognition of lived experience in legal discourse on crime and punishment, advancing a vision of justice that embraces the transformative value of belonging.
Extreme hot weather poses increasing risks to mental health. Yet, factors affecting vulnerability are under-researched. This mixed-method study integrates a systematic review and qualitative investigation to identify risk and protective factors for heat-related mental health issues, leading to the co-development of a screening tool. This could inform future research and, pending validation in clinical settings, support mental health professionals in assessing vulnerability among service users.
Methods
We searched PubMed and Web of Science for publications on extreme heat, mental health, and risk/protective factors. In addition, we conducted six focus groups with 21 people with lived experience of heat and/or mental illness and 12 healthcare professionals. Transcripts were analyzed using thematic content analysis and informed the co-development of the screening tool.
Results
Out of 764 articles identified by the systematic review, 47 were included. Evidence emerged for age, sex, existing mental illness, ethnicity, and socioeconomic status as risk factors. However, findings were inconsistent between studies, likely due to differences in study population and methodology. Protective effects included good physical health, social support, and exposure to green spaces. Our qualitative investigation identified additional risk and protective factors related to: (1) behavioral adaptability, (2) personal heat sensitivity, and (3) disparities in heat exposure. The resulting screening tool, HEAT-MH (Heat Exposure Assessment Tool for Mental Health), contains 15 questions on previous experiences of heat, general health, and lifestyle.
Conclusions
The mental health impacts of extreme heat depend on a range of risk and protective factors, including demographic, socioeconomic, health, and lifestyle characteristics.
Experiences of healthcare services are an important indicator of quality and health system improvement. In correctional facilities, structural and contextual factors affect experiences of healthcare services and processes for voicing these experiences. This study explores barriers and opportunities for people in custody to voice their experiences of healthcare services in custody. We held four focus groups and one interview with people living in the community who had accessed, or tried to access, healthcare services while incarcerated in a provincial correctional facility in Ontario, Canada in the previous five years. Using template analysis, we developed four interacting themes related to expectations and experiences of healthcare, and of submitting complaints or asking for help: i) the system is not designed for healthcare, ii) gatekeeping and perceptions of ‘deserving’ healthcare, iii) impact of healthcare on other outcomes, and iv) calling the abyss. These factors affected perceptions of the potential efficacy of a patient feedback process, and how people in custody were likely to engage with it. Participants also identified five key features that should be components of any patient feedback processes. This study highlights challenges to patient-reported experiences of care in quality improvement work in restrictive environments and with incarcerated populations.
Evidence shows that advance care planning has the potential to reduce involuntary admissions and empower service users. The perinatal period is a time of heightened risk of relapse of mental illness, and, in this context, many perinatal mental health services routinely offer pre-birth mental health care planning meetings.
Aims
We aimed to explore the experience of perinatal mental health service users and their partners following a pre-birth planning meeting and the writing of a perinatal care plan that included advance care plans for birth, postpartum and in case of crisis.
Method
We interviewed pregnant perinatal mental health service users and their partners at two large, urban maternity hospitals in Dublin, Ireland. We used thematic analysis to identify key themes relevant to their experiences of pre-birth planning meetings and written perinatal mental health care plans.
Results
Ten service users and three partners were interviewed. We identified five themes: theme 1, Hoping for change; theme 2, A wish to be heard; theme 3, Individualised care; theme 4, Security of ‘a plan in place’ and theme 5, Role of the support network.
Conclusions
Women and their partners value pre-birth planning meetings and these should routinely be offered within services, with consideration as to the size and timing of the meeting, and who is in attendance. These findings are relevant to general adult and liaison psychiatrists who should also incorporate advance care planning into routine practice.
The study investigates the potential role that films may play in raising awareness and motivation to act for climate change mitigation. The study was conducted amongst middle school children based in Kangra District of Himachal Pradesh, India (n = 135). The selected students were classified into higher and lower exposure groups based on their level of exposure to climate vulnerabilities. All the participants were given an educational intervention through a short film designed to enhance the student’s understanding of climate change issues. Data were analysed using GLMM with fixed effects of time, exposure and their interaction. Knowledge increased significantly from pre- to post-test on all items (McNemar’s tests, all p < 0.001). Although both groups improved, gains were consistently larger in the high-exposure group. Model-predicted probabilities rose from 38.1%→52.5% in the lower-exposure group and from 33.1%→69.3% in the high-exposure group, a statistically significant 21.8 percentage-point greater gain for high-exposure students. The study demonstrates that film-based interventions have significantly improved climate knowledge among the middle-school students, with larger gains observed in those with higher lived exposure to climate vulnerabilities.
Recent proposals for revising the Diagnostic and Statistical Manual of Mental Disorders (DSM) aim to improve psychiatric diagnosis. While these efforts reflect substantial ambition, they continue to operate within assumptions embedded in the DSM’s underlying classificatory logic. This editorial examines whether such incremental revision is sufficient.
Methods
We provide a critical analysis of the recently published DSM roadmap and accompanying subcommittee commentaries. Drawing on contemporary literature, we identify five structural blind spots in the current reform agenda: public mental health, scientific inference, lived experience, epistemic governance, and the function of diagnosis. Based on this analysis, we propose an alternative dialogical redesign for the DSM.
Results
We argue that current revision considerations risk increasing complexity without resolving fundamental limitations in psychiatric classification. Specifically, our analysis highlights several areas that warrant further consideration, including the relationship between diagnostic expansion and societal conditions, the applicability of group-level scientific findings to individual care, the incorporation of experiential knowledge, participatory governance in revision processes, and the identity-related implications of diagnosis. In response, we propose redesigning the DSM as a hybrid dialogical system that retains coarse-grained classificatory categories for pragmatic purposes while shifting diagnostic practice toward contextual interpretation, collaborative meaning-making, relational understanding, and individualized care formulation.
Conclusions
The challenges facing psychiatric diagnosis require more than incremental refinement. We therefore argue for a dialogical redesign of the DSM that better reflects the context-dependent, experiential, and relational nature of mental health conditions, positioning diagnosis as a starting point for collaborative inquiry.
Thought disorder (TD) is a core feature of severe mental illnesses such as schizophrenia, characterized by disruptions in speech, language, and communication. People with TD face unique barriers that hinder their involvement in research, both as participants and as partners. Their systematic underrepresentation in psychiatric research is driven by pervasive assumptions about their decisional capacity, willingness to participate, and ability to engage in research. This perpetuates a biased evidence base, likely hindering the therapeutic progress toward addressing this core problem.
Methods
This review, informed by professional (clinical and research) and lived (bottom-up and phenomenological) experience of TD, examines how flawed assumptions regarding capacity, engagement, and participatory abilities serve as active barriers to inclusion.
Results
We argue for a shift toward supported inclusion through tailored capacity assessments, enhanced informed consent procedures, targeted training of research personnel, and systemic institutional practices. Incorporating lived experiences of those with TD as research partners is integral to this approach, fostering co-production of research that is more valid, inclusive, and applicable.
Conclusions
Without these inclusion-focused changes, the development of treatments for TD is likely to have very slow progress and a critical segment of the severely unwell population will continue to be underrepresented from the scientific process, undermining both the utility and generalizability of psychiatric research.
This chapter establishes the foundation for the book by challenging the traditional view of dyslexia as merely a reading disorder in childhood. It frames dyslexia as a persistent neurodevelopmental syndrome that affects working memory. Drawing on scientific evidence and decades of diagnostic experience, the authors argue for a shift from superficial behavioural definitions to a deeper understanding of dyslexia’s neurological basis. They critique circular definitions focused solely on reading difficulties and emphasise the importance of distinguishing between skills (learned behaviours) and abilities (underlying cognitive capacities). The chapter also critiques pseudoscience and postmodern trends that prioritise anecdotal or ’lived’ experiences over falsifiable, empirical research. It calls for better integration of findings across disciplines to improve support and interventions across the lifespan. By placing dyslexia within a broader cognitive and developmental framework, the authors aim to clarify its impact on life beyond education and propose working-memory inefficiency as a core deficit that explains both academic and functional challenges.
Literary and archaeological evidence suggests that the Roman world was profoundly unequal. What did this mean in material terms for people at the bottom of the social hierarchy? Astrid Van Oyen here investigates the lived experiences of non-elite people in the Roman world through qualitative analysis of archaeological data. Supported by theoretical insights from the material turn, development economics, and feminist studies, her study of precarity cuts across the experiences of workers, the enslaved, women, and conquered populations. Van Oyen considers how precarity shaped these people's relation to production, consumption, time, place, and community. Drawing on empirically rich archaeological data from Roman Italy, Britain, Gaul, and the Iberian Peninsula, Van Oyen challenges long-held assumptions and generates new insights into the lives of the non-elite population. Her novel approaches will inspire future studies, enabling archaeologists, historians, and anthropologists to retrieve the unheard voices of the past.
After a brief overview of tardive dyskinesia, this targeted narrative review will examine the psychosocial consequences of tardive dyskinesia on patients’ daily lives, including stigma, social withdrawal, and quality of life, as well as impact on physical functioning. The extant literature on the impact of tardive dyskinesia on patients and their caregivers is described and summarized, including how patients with tardive dyskinesia perceive the severity and impact of their motor symptoms and whether this aligns with clinical observations by their treaters.
This Editorial introduces the Special Issue of the Irish Journal of Psychological Medicine focused on the evolution, implementation, and critique of the recovery approach in mental health. Tracing its roots to the 19th-century writings of John Perceval, a pioneer in lived experience advocacy, we outline how the recovery approach has grown into a global movement grounded in human rights, agency, and systemic transformation. We define the recovery approach and outline its values of shared humanity, justice, equality, respect, and compassion. We then discuss both the global progress made (including advances in peer support, Recovery Colleges, and coproduction in research, policy, and service development) and the significant challenges faced (ranging from tokenism and epistemic inequality to professionalisation and systemic resistance). The Editorial also explores tensions such as ‘neorecovery’, clinician uncertainty, and the co-optation of lived experience roles. We then provide a brief overview of the diverse contributions that comprise the Special Issue. Rather than romanticising the potential of lived experience integration, or celebrating marginal successes, we argue that, as a whole, this scholarly body of work illuminates pathways to mental health system reform and transformative change. These contributions help us inch closer to the promised revolution, a mental health system that has its foundations in equally valued clinical expertise, scientific rigour, and lived experience knowledge. Such a system would assist people that encounter psychological distress and mental illness, in all its forms, to not only heal but overcome, transcend, and flourish beyond suffering.
When returning to their communities after incarceration, individuals face elevated rates of mortality and other poor health outcomes. The reentry period provides a critical opportunity for interventions to improve health, but, historically, a prohibition on federal Medicaid coverage during incarceration has created barriers to care after release. To address these barriers, many states have applied for Medicaid section 1115 reentry waivers to expand access to Medicaid coverage for certain pre- and post-release services. These waivers present an important opportunity to improve care access during reentry, but, if driven by carceral entities, they run the risk of replicating carceral systems that harm health. This article advocates for an alternative approach: centering the perspectives of people with lived experience of incarceration in all aspects of waiver design, implementation, and evaluation. Drawing on personal and professional experience, the authors explore the value of centering lived experience in health policy and identify successes, challenges, and lessons learned from California’s waiver. This article also explores the importance of centering lived experience in information sharing and privacy practices in waiver implementation. Across these areas, waivers driven by lived experience can promote dignity, autonomy, and wellbeing, dismantling carceral approaches that reinforce stigma, erode trust, and perpetuate inequities.
Although the concept of concept did not play a central role in twentieth-century phenomenology, what Heidegger and Merleau-Ponty thought about concepts can be inferred indirectly from what they did say about understanding, cognition and judgement. Heidegger’s approach to cognition by way of a phenomenology of assertion, for example, implies an identification of concepts with the meanings of words. Similarly, Merleau-Ponty stresses the dependence of conceptual thought on perceptual experience and bodily skill. Concepts play a more prominent role in Gadamer’s philosophical hermeneutics, particularly in his distinction between the essential ongoing formation of concepts in the interpretation of texts, and their methodical application in the natural sciences.
This article explores violent extremism (VE) through an embodied, bottom-up lens, using body-mapping with Muslim women in Kenya. Drawing on two selected body maps, we critically interrogate the use of VE is as a framework for analysing the harm experienced by women. Our participants used the terminology of VE to refer to not only Al-Shabaab–related violence but also gender-based violence, gang violence, and state violence. These insights highlight a key tension in critical scholarship on VE: while often critiqued from a distance, VE is actively reappropriated by those most affected. We argue that, as a community disproportionately targeted by countering violent extremism (CVE) initiatives, our participants employed the language of VE as a form of adaptive resistance – challenging both the violent policing of CVE and the patriarchal violence embedded in their daily lives. This article contributes to feminist decolonial critiques of VE by centring the voices of those most impacted, and by questioning critiques that overlook lived experiences. Additionally, by sharing our arts-based methodology, we contribute to emerging literature on decolonial research practices. Finally, we raise critical questions about the intersections of gender-based violence, gang violence, state violence, and VE in Kenya and beyond.