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Who – or what – people engage for supportive conversations is rapidly evolving as technology becomes more sophisticated and users adapt their expectations and perceptions of communication. Empathy is central to understanding and responding to emotions along with communicating sensitive supportive messages. Questions surrounding the role of empathy when communicating with artificial intelligence, however, have yielded mixed and interesting conclusions. This chapter discusses perspectives on empathy, supportive communication, and the influence of machine agents in the process of communicating sensitive, empathic messages. We consider whether machine agents can simulate empathy and convey sensitive support or merely produce reactive content that might simply appear empathic. This chapter offers insights into the relationship between empathy and supportive interactions with artificial intelligence.
We must consider how care in the NICU is delivered to improve outcomes for infants and their families. Cultures and practices that support brain maturation, aim to prevent injury, aid in recovery, support the role of the family, and optimize the environment are referred to as developmental, neuroprotective, or neuropromotive care models and are important strategies to optimize the neurodevelopment of vulnerable infants. Neurosupportive care and its full impact on the developing brain has been hard to define due to the range of approaches and confounding factors; therefore, it has been underfunded and underexplored. We review what is known, but there is urgent need for broader recognition of and investment into the many opportunities to improve our care models. We discuss evidence-based care practices that have been shown to impact developmental outcomes, including use of specific care contexts and cultures, a focus on partnerships with families, use of a multidisciplinary team, reduction of pain and stress, and enhancing the sensory environment. Paradigms that adopt an “All Care is Brain Care” approach, center families’ engagement and experience, and employ intentional brain-focused strategies to protect and promote brain development can create a neuroprotective care culture.
This chapter describes new analysis we conducted to address the question about how money and love matters for children’s development. Because children also have a say in their own development, we also include in our analysis, their contribution via key child characteristics. Most of the literature reviewed for this book addresses either the money story OR the love story (mostly mothers), but rarely, if ever, includes the entire family system. We find empirical support that both – love and money – matters as well as children’s early skills and lay out implications of these findings for research, policy, and programs.
Organisational culture directly affects the implementation of welfare practices, the effectiveness of communication among staff, and the overall morale within the team. It discusses the importance of a positive, inclusive, and supportive workplace environment that fosters both human and animal well-being. Furthermore, the chapter highlights the challenges and strategies involved in cultivating a culture that upholds high standards of animal care, promotes continuous learning, and encourages ethical behaviour among all staff members. It also examines the impact of leadership styles on the health of the organisational culture and its subsequent effect on animal welfare. This comprehensive analysis provides valuable insights for anyone involved in the management or operation of animal care facilities, offering practical advice on how to enhance organisational culture to better serve both the animals and the people who care for them.
Pregnancy loss (PL) is a common complication in early pregnancy, occurring in ~25% of recognized pregnancies. Standard medical care after PL traditionally focuses on emptying of the fetus from the uterus. Historically the emotional impact of PL has been overlooked. However, research shows that PL has a negative psychological impact on women’s and their partner’s well-being, and that patients wish for post-PL care that attends to their emotional and psychological needs as well. This chapter summarizes the latest research on the psychological impact of PL, patient preferences for medical and supportive care after PL and in a new pregnancy and provides recommendations for care. Psychological impact and support after ectopic pregnancies and late pregnancy losses > 24 weeks are not specifically addressed in this chapter. Health care staff providing care to those with PL should be educated about the psychological impact of PL including that a first PL can cause emotional distress for both partners and that the psychological burden can increase with multiple losses. Informing patients that their emotional reactions to the PL are normal and to be expected without diminishing their impact is crucial. Information provision and empathic and sensitive communication is valued by patients and their partners. Structural changes are also needed to facilitate continuity in care and follow-up in order to promote overall well-being after PL.
Recent research challenges the common belief that romantic relationships matter more to women than men. Using insights from the interdisciplinary literature on mixed-gender relationships, we propose that relative to women, men (a) expect more benefits from relationships and strive for a partner more strongly, (b) gain more mental and physical health benefits from romantic involvement, (c) are less likely to initiate breakups, and (d) suffer more from relationship dissolution. We argue that these differences largely stem from differences between men and women in available intimacy and emotional support. We discuss implications for friendships, emphasizing the importance of cross-gender friendships.
Recent findings narrate profiteering detrimentally impacting hospice care quality. However, no study has examined the caregiver experience of emotional and spiritual support expressed online. The purpose was to evaluate the hospice caregiver’s experience of emotional, spiritual, and bereavement support and whether the care was respectful and compassionate to the care unit.
Methods
Retrospective mixed methods of sentiment and quantitative analysis. Sources were online caregiver reviews (n = 4,279), Consumer Assessment of Healthcare Providers and Systems (CAHPS) data on the 50 largest US hospices.
Results
Caring and compassionate professionals were lauded in nonprofit (+.57) and for-profit settings (+.46). The nonprofit experience was in the excellent range (+42) for emotional, spiritual, and bereavement support but fell to dissatisfying (–.15) among for-profits. A respectful experience (16%) was much less commonly expressed than a compassionate one (38%). Distribution of CAHPS “Treating patient with respect” (M = 89.62, SD = 2.63) and “Emotional and spiritual support” (M = 89.80, SD = 2.04) limited inter-hospice comparisons.
Significance of results
Compassionate professionals were thanked and praised regardless of profit status. Sadly, anger was expressed toward large, for-profits more fixated on census than emotional, spiritual, and bereavement support; thankfully nonprofits were more supportive. CAHPS items for “Treating patient with respect” and “Emotional, spiritual support” offer limited discriminating value since low CAHPS performers always had relatively high scores on these 2, yet otherwise low scores on the remaining 6. Online reviews on the same topics provide a more substantive and realistic appraisal – distinguishing high from low performers. A higher bar than mere respect is needed for the tender experience of death, dying, and grieving. Compassion is an especially relevant addition to CAHPS since caregivers named compassionate staff as a distinguishing factor. Parity for mental health at end of life is a vital research topic. Future research should also explore the caregiver expectations set on admission.
Edited by
Richard Williams, University of South Wales,Verity Kemp, Independent Health Emergency Planning Consultant,Keith Porter, University of Birmingham,Tim Healing, Worshipful Society of Apothecaries of London,John Drury, University of Sussex
This chapter is a case study that describes the experience of establishing a peer support programme in a critical care unit in an NHS hospital in the UK. The case study is set within a description of what peer support is and ideas about the underpinning principles for a peer support programme.
Ethnic discrimination during pregnancy is linked to maternal psychological distress, adverse birth outcomes and increased offspring morbidity and mortality. An evolutionary perspective reframes offspring health issues as a risk to maternal fitness. We argue that kin may be evolutionarily motivated to buffer psychosocial stressors for the mother during pregnancy. Previously, we found that the relationship of a pregnant woman with her own mother (fetus’ maternal grandmother) had a positive association on maternal prenatal psychology, above and beyond her relationship with her fetus’ father. Here, we ask if grandmothers buffer mothers’ prenatal psychological distress from ethnic discrimination. Using self-report data collected from 216 pregnant Latina women living in Southern California, we found discrimination to be significantly, positively associated with depression, anxiety, and stress in linear regression models. Maternal grandmother communication attenuated the association of discrimination and all three psychological distress measures, adjusting for the mother's relationship with the father. Maternal grandmother emotional support similarly significantly moderated the relationship of discrimination with depression and anxiety. We did not observe any significant interactions for paternal grandmother relationships. Geographic proximity was not a significant stress buffer. Results suggest the important role maternal grandmothers play in perinatal mental health, and that these benefits exist uncoupled from geographic proximity.
One of the most effective resilience factors is all around us - the people in our lives. Even during the COVID-19 pandemic, which forced the world into lockdown, we found creative ways to reach out to one another. We describe the “tap code,” an ingenious way that Vietnam War POWs, often kept in isolation, supported each other and share informational vital for their mutual survival. We summarize research showing that social support can lower the risk of developing depression and postraumatic stress disorder; and that its opposite, feelings of loneliness, increases one's risk of developing a range of different illnesses. In our busy lives, building and keeping up our social support network takes effort, but it is an essential lifeline.
This chapter presents a case for actively involving children and young people in the experience of parental cancer, facilitating, and encouraging open and honest communication and age-appropriate provision of information. The voices of children and young people should be listened to and carefully considered. More child friendly spaces are needed. Healthcare practitioners play a crucial role involving children and young people, inviting their questions, getting to know and understand their individual needs and how to respond appropriately to them. Families can benefit from emotional, and family support early in the cancer diagnosis to prevent long term negative effects or issues in the future.
This chapter provides the conclusion to the book, summarizing the findings and main points of each chapter. It also outlines the contribution the book makes to an understanding of the characteristics of dyslexic university student anxiety and an identification of ways of coping that students with dyslexia employ to deal with the cognitive and emotional difficulties manifested by their dyslexia. Implications of this for dyslexia practitioners, for universities and for academics responsible for teaching and delivery of undergraduate and postgraduate programmes are specified. In relation to the dyslexia practitioner, the chapter provides pragmatic advice on ways of using appropriate support styles that combine targeted emotional support with delivery and development of suitable cognitive techniques. Guidance is also provided on ways that emotional support could be utilised during individual sessions with students to encourage open discussions on academic areas where the student may feel vulnerable and sensitive emotionally. For universities, practical suggestions are made on ways of ensuring that the academic environment fosters an inclusive culture to establish a suitable, supportive and inspiring place of learning for students with dyslexia where they feel secure and encouraged to discuss any emotional difficulties they may be susceptible to.
Some adverse medication events will occur, including some that were preventable. These events may have serious consequences for the practitioners and it seems sensible to provide support for these clinicians. The term “second victim” has been used, but its use tends to absolve the clinician of any responsibility and equates the suffering of the clinician who erred with the suffering of the patient and their loved ones. An appropriate response to avoidable harm should include emotional support for the clinician. While some programs exist, very few institutions currently provide this type of support. An institutional willingness to relieve staff from clinical duties when the emotional response to an adverse event might create an ongoing risk to patients is also important. Support needs to be offered within a just culture whose ultimate goal is to improve patient safety: practitioners should be expected to engage actively. There is potential restorative and therapeutic value of learning from adverse events and continuously improving medication safety. It may be that we do need some resilience to the “heat of the kitchen”, but it is also important to keep that heat as low as possible. Reducing the likelihood of harm to patients is the best support that can be provided.
Although the literature on social capital, social support and social networks uses the concept of emotional support, studies rarely recognise nuances of the emotional relationships in late life. Using a personal communities framework, we examine the subjective meaning of family and friendship ties that form the network of emotionally close relationships of a cohort of Chilean people between 60 and 74 years of age. Chile is an interesting case to investigate personal communities, as the country is facing both a rapid process of population ageing and the consequences of abrupt socio-cultural changes triggered by a military government. We conducted qualitative semi-structured interviews using personal communities diagrams that enabled study participants to reflect on what and how different types of personal ties were important to them. Data analysis included thematic analysis of interview transcripts and classification of identified personal communities using Pahl and Spencer's typology. The personal communities framework proved useful in capturing the composition of older people's networks of close relationships and in reflecting the diverse ways different ties are relevant in late life. We further developed a complementary typology based on the distinction between ‘clustered’ and ‘hierarchical’ personal communities. This complementary typology adds a cultural dimension to understand better emotional closeness in late life in a context of rapid socio-cultural changes affecting levels of social trust.
Genetic risk is particularly salient for families and testing for genetic conditions is necessarily a family-level process. Thus, risk for genetic disease represents a collective stressor shared by family members. According to communal coping theory, families may adapt to such risk vis-a-vis interpersonal exchange of support resources. We propose that communal coping is operationalized through the pattern of supportive relationships observed between family members. In this study, we take a social network perspective to map communal coping mechanisms to their underlying social interactions and include those who declined testing or were not at risk for Lynch Syndrome. Specifically, we examine the exchange of emotional support resources in families at risk of Lynch Syndrome, a dominantly inherited cancer susceptibility syndrome. Our results show that emotional support resources depend on the testing-status of individual family members and are not limited to the bounds of the family. Network members from within and outside the family system are an important coping resource in this patient population. This work illustrates how social network approaches can be used to test structural hypotheses related to communal coping within a broader system and identifies structural features that characterize coping processes in families affected by Lynch Syndrome.
As the world undergoes rapid ageing, informal support from friends and relatives is becoming especially important among older adults in middle- and low-income countries, where formalised social protections may be limited. We use new data from a cohort of adults aged 40 and older in rural South Africa to explore how receipt of emotional support differs by gender and marital status. Our findings suggest that women are more likely to get emotional support than men and have more sources of support. Moreover, women are more likely to get emotional support from relatives, whereas men are more likely to get support from friends. In regard to marital status, married people are more likely to get emotional support and have more sources of support than people who are not married. However, separated/divorced and widowed people are more likely to get emotional support from relatives and have more sources of non-spousal support than married people. These findings point towards gaps in informal systems of support, and the particular importance of considering men and unmarried (especially never-married) people when designing policies to offer social protections to older populations.
As the older U.S. population becomes more ethnically diverse, there will be an increased need for culturally sensitive hospice care services. Hispanics often experience multiple barriers to quality end-of-life care services.
Objective:
To address the underlying disparities in the cultural, emotional, and spiritual aspects of hospice care, the objective of the present qualitative study was to examine the emotional and spiritual needs of Hispanic patients' families while in hospice.
Method:
Semistructured in-person interviews were conducted with 29 Hispanic patients' families regarding their perceived experience of the hospice-based emotional and spiritual support received. Demographic information was collected on both the family member and the patient. Interviews were digitally recorded, transcribed, and analyzed using thematic content analysis.
Results:
Participant narratives fell into five main themes: (1) the influence of Hispanic culture in the relationship with hospice care providers; (2) types of social support received from hospice; (3) barriers to receiving support; (4) lack of health literacy regarding hospice care; and (5) cultural preferences for religious/spiritual support in hospice.
Significance of Results:
Our results provide insight into the specific emotional and spiritual needs of Hispanic families receiving hospice services. Our findings highlight that cultural values play an important role in the hospice care experiences of Hispanic families.
This study aimed to explore the experiences and challenges of informal caregivers in Singapore with the intent of identifying the multi-dimensional unmet needs from their perspective and generating caregivers’ needs checklist based on the findings.
Methods:
Informal caregivers were relatives of people with dementia and were responsible for organizing care and providing regular physical and/or financial support. Using a qualitative research design, informal caregivers’ experiences were explored. A total of ten focus group discussions and 12 semi-structured interviews were conducted with adult caregivers. Caregivers’ perceived unmet needs were identified using thematic analysis. Findings from the qualitative study were combined with inputs from professionals to create a checklist of caregivers’ needs for dementia.
Results:
The average age of the participants was 52.9 years; the majority of the participants were of Chinese ethnicity (50%), followed by Indian (23%), Malay (22%), and other (3%) ethnic groups. Informal caregivers perceived four categories of unmet needs: (i) emotional and social support, (ii) information, (iii) financial support, and (iv) accessible and appropriate facilities. Caregivers strongly expressed the need for emotional support to overcome the psychological and physical burden of care. Challenges with obtaining adequate information, access to services, and financial barriers were discussed. Based on these findings and expert panel discussions, a checklist of 26 items representing their unmet needs was designed.
Conclusions:
Informal caregivers face several challenges while caring for their relative with dementia and hence there is a clear demand to address their unmet needs for information, services, respite, and emotional and financial support.
Previous research has shown that exchanges of support within social networks reduce the loneliness of older adults. However, there is no consistent evidence on how types of support (instrumental and emotional) and the direction of that support (giving and receiving) are related to loneliness, and whether the effects are culture-specific. The aim of this study was to investigate support exchanges and their effects on loneliness in Spain and the Netherlands. We suggest that cultural differences, such as more interdependent cultural values in Southern Europe and more independence-related values in Northern Europe, influence social realities such as the social support exchanged. In Spain relationships with family members are determined by mutual obligations; older people expect to receive instrumental support from them. However, in Northern Europe independence is highly valued and intimacy and closeness are shown primarily by confiding about personal matters. This paper examined data from two comparable surveys, one in Spain (N=646) and one in the Netherlands (N=656). Older adults in Spain provide for, and receive, high amounts of instrumental support and this proved to be a protective factor against loneliness. An alternative pattern was found in the Netherlands where respondents provided more and received more emotional support than Spanish older adults; emotional support is a protective factor in the Netherlands (but only for support received).